Yesterday I invited questions from readers, and I received some outstanding ones. Thank you all!
Tamara asked about our youngest grandson Elias.
Our daughter and her husband were expecting their first baby on January 29, 2021. Tom and I were so excited to finally visit them in Arkansas to see Heather pregnant. It was such a happy anticipation to welcome grand baby #9 and watch Matt and Heather receive the blessing of parenthood.
After our wonderful visit. I got a phone from her saying the doctor was putting her on bed rest. I flew out to take care of her and to help keep her baby safe and secure.
But what we didn’t realize was God was working to rescue Elias from a virus he had contracted during the first trimester called CMV. Babies that go full term with this virus often have very serious health disabilities including hearing loss, lung, liver and brain damage. Some don’t survive.
Elias Angel was born on October 14, 2020, at 24 weeks and 5 days. He was 1 lb 6.6 ozs and 12” long. Roughly the size of a water bottle.
“For you formed my inward parts; you knitted me together in my mother’s womb. I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well.”
Psalm 139:13-14 ESV
The NICU staff was amazing. Our daughter calls them God’s angels. They began Elias on medication right away to fight the effects of CMV. Everyday he surprised all of us making forward progress.
From his little NICU cubicle we were able to watch God do what He normally does in the “secret place” as Psalm 139 declares. We were in awe of this miracle being formed before us.
He was in the NICU a total of 116 days. When Matt and Heather were finally able to drive him home from Oklahoma to Arkansas (a two hour drive), Papa and Nana were there waiting to see and hold him for the first time. What a moment that was!
He was so tiny and quiet. The ventilator and his immature core muscles made his voice very weak. The only way we knew he was crying was when his heart rate monitor would go off. His care required 24 hour diligence with feeds and medications.
Fast forward to today, Elias…
- Is still making forward progress, thanks to an amazing team of doctors and therapists
- can hear well
- can see and recognize people
- Has the cutest personality
- Loves to belly laugh (still quiet but now he’s audible)
- Is trying his best to crawl
- Is eating baby food
- Has two teeth
- Loves books
- And kisses Mommy every chance he gets
His prognosis is wait and see. Every child in his condition is unique. There are no certainties. But one thing we know! But God! He has been leading every step of Elias’ treatment since the day He was conceived. He is our miracle baby and one whom we call our Tiny Warrior.
He now weighs over 14 lbs at 13 months of age.
I write a song for each of my grandchildren. This is Elias’ song, sung to the tune, Jesus Loves The Little Children…
🎶Nana loves Elias Angel. He’s as sweet as he can be. When he was born he won my heart, tiny warrior from the start. I thank God He brought you to our family!🎶
This is my 23rd post in The Ultimate Blog Challenge to write everyday in November.
Darn viruses. Wasn’t it bad enough Elias was born during Covid? He sure seems to have come a long way, and look at him, shining now!
Thank you for sharing his story. May he keep thriving and be your and your daughter’s little sunshine!
Yes he has come a long way. Right now he’s battling Roseola.
What a happy little guy! I’ve never heard of CMV, God sure put his earth angels in the right place and time. What a beautiful thing to write a song for each of your grandchildren, Elias song is perfect!
He is a happy boy. We are still amazed at how far God has brought him. A really good Thanksgiving. 🥰
So wonderful with his resilience and care!
Interesting. I do not have the CMV (or I have the antibody, can’t remember which) so when I used to donate blood on a regular basis they said they could use my blood for premature babies and would call me all the time (plus my 0- type). I’ve donated so many times though that it is hard to get the blood now since my veins are scarred. What a cutie he is! Congrats.
Janet thank you so much for the countless number of little babies you’ve helped. We’ve learned so much about what it takes to give these micro-preemie a fighting chance at life. You’re a hero!
They used to tell me that one pint of my blood would help 4 babies. It made me feel really good to do that.
He is so happy and is so cute! May he continue his forward progress!
Thank you Nikki. This is our prayer.