Today my heart is once again clinging to God and His Word for strength, help and comfort.
Elias, our 22 month old grandson, is a fighter. He has been since he was born.
- Born at 24 weeks and 5 days, after his water world broke at 22 weeks
- He was in the NICU for 116 days
- He was born with CMV which led to microcephaly and cerebral palsy
- He exudes more joy than most of us on our best days
- He is a miracle whom God rescued
Now another challenge has confronted him. He has cancer—rhabdomyosarcoma—behind his left eye to be specific. Of the two strands, his is the one less threatening, but still serious. He had a biopsy of his protruding left eye revealing a 1” tumor intertwined with nerves and blood vessels—inoperable. The pressure in his eye threatens glaucoma.
God rescued him yet again. Heather happened to read the story of a little boy who’s eye started bulging. It turned out he had this same cancer hiding behind the eye. After reading it, Heather thought Elias’ eye looked a little bulged. Her doctors all said to watch it and see if it changed. Most likely it was just swollen with allergens.
Had she not read this story we may not have noticed the threat as quickly. She has tried to go and find this article to no avail. Could it be God was leading her in a miraculous way?
Elias will have to do many more hard things to fight this beast. One happened yesterday when they inserted an NG tube through his right nostril. To say he didn’t like it would be an understatement! I am grateful I wasn’t there to experience his protest. Nana has limits. The good part of this, Elias will get all the nutrition he needs to gain some weight before chemo begins. It is also giving Heather the first break from around the clock feeds since he was born.
What’s next? Tomorrow he will have a bone marrow biopsy as well as a spinal to see if there are any cancer cells hiding there. He will also have a PET scan.
A two week hospital stay is likely this time. And once again we wait.
But God! He is not absent or indifferent. While I can’t say why He allows these things to happen. I can say that He has rescued little Elias for a reason. His joy is infectious, ask anyone who has followed his story—and there are many! He has shown us all how to keep going making the most of each day.
I love this little guy so much.
The Lord impressed Psalm 16:5-6 on me yesterday at church:
“The Lord is my chosen portion and my cup; you hold my lot. The lines have fallen for me in pleasant places; indeed, I have a beautiful inheritance.”
- Psalm 16:5-6 ESV
My circumstances are not the boundary lines around me. If they were it would be hard to agree with David that my lines are pleasant places. No. God has also said in His Word that He goes before me and behind me. HE is the lines that surround me giving me boundaries of His grace. I can rest knowing He’s my Shepherd no matter what threatens.
Indeed, the lines have fallen in Pleasant Places!
If you would like to help, our oldest daughter set up a Go Fund Me campaign to provide for their many needs in the months to come.